Let’s eat paste!

Okay, not really.

I haven’t written much lately, mostly because of two reasons:

  1. I was incredibly sick and felt like death, and
  2. It’s almost time for me to turn in all of the essays I’ve written over the past year for evaluation by whoever at ADF is in charge of that kind of thing.

So, in essence, I haven’t written much because I’ve been busy writing in between bouts of coughing and other assorted misery. I have done some other creative-type things, though, which is awesome. I’m in the process of moving my altar (hopefully to a place where cats can’t happen to it), too.

Anyway, you’re probably wondering what the paste bit is about. Let me explain.

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DIY Brain Chemistry

I’ve been doing a lot of reading.

I don’t want to call it “research,” because looking up a bunch of studies isn’t really the same as designing an experiment or compiling a meta analysis, but it’s a lot of reading nonetheless.

See, for years, I’ve been trying to find ways to mitigate some Brain Things. It isn’t purely panic disorder, because there are some very evident physiological aspects to that aren’t really adequately explained by anxiety. It also isn’t purely physical, either.

The first doctor I ever discussed it with was my pediatrician. I was thirteen, had begun experiencing regular panic attacks, and my mother was tired of it.

“It’s anxiety,” he said. And that was it.

It went untreated for years — I was told it was all in my head, that the liver absorbs adrenaline in under a minute (lol what), and there was no reason for any panic attack to last longer than that. This left me with two things:

  1. A raging, untreated panic disorder.
  2. A diagnosis of anxiety.

Getting diagnosed with anxiety is a curse in its own right, particularly if you’re medically female. Women’s pain is often ignored as it is, particularly for black women. If you have a history of anxiety and depression, it is downright impressive how many medical conditions it’ll get blamed for. (Like the time I was given SSRIs to treat a symptomatic hemangioma. Fun!)

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Living my best life is sucking the life out of me.

Its 2:00 in the morning, and I am writing because I have, once again, destroyed my sleep schedule.

Well, not just my sleep schedule.

I have idiopathic intracranial hypertension. It makes me forget things, feel crushing headaches every moment of the day, occasionally lose my ability to see, and want to sleep basically forever. Left to my own devices, I will sleep for twelve hours and still be able to take a substantial midday nap.

Such is life.

Unfortunately, this doesn’t allow me much time for anything else. This doubly sucks, because what time I am left is also devoted to coping with the headaches, dizziness, anxiety, depression, and other trappings of having a head full of surplus brainjuice. Showering is tiring. Clothes hurt. On a high-pressure day, even holding my head up is more than my neck can manage.

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Why “Unseelie?”

So, I’ve gotten asked, “Why do you go by Unseelie J online?”

There are a couple of reasons. Yes, it’s a pun on unseelie fae, but it goes a bit deeper than that.

While the word unseelie, particularly when attached to the unseelie court, is taken to mean “malevolent,” it has a number of uses. Seelie, its opposite, meant blessed, lucky, or happy. Unseelie, therefore, meant unhappy, unfortunate, or not blessed. It’s a term that resonates with me.

I have mostly created my own luck in life — I was born to a poor family, in a not-terribly-great family situation, raised by an abusive, staunchly religious homophobe, nearly killed in a car accident as a teenager, and, to top it all off, was diagnosed with a very rare, poorly understood, incurable, potentially lethal neurological disorder about six years ago.
It’s been quite a time.

I’ve also long realized that my primary purpose in life may very well be to serve as a cautionary tale to others, and I’ve become okay with that. I’m also okay with the fact that I am chiefly alive out of pure contrariness.

After all, like Maria Bamford says,

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So, while I’ve got a neurological disorder, anxiety, physical pain, and the weight of my past to carry around, I’m okay with being unseelie. At this point, I also aim to be the biggest thorn in the side of the status quo that I can be, so I’m even okay with being considered malevolent.

It all depends on who’s doing the considering.  💜

 

A small, helpful rock.

Chronic illness demands strange rituals from you.

Sure, you go to the doctor. You take what they give you, though you might find that you have to do so at a certain time of night, or with a certain type of food, or adjust your dosage based on the weather or time of the month you take it. You start developing the small repetitions that (hopefully) keep you functioning.

Sometimes, that isn’t enough. So you branch out — you start adding medicinal baths, special pillows, vitamins, herbs. You go to a massage therapist, maybe an acupuncturist. You stretch, meditate, and spray yourself with magnesium oil. Your house becomes a haven for therapeutic smells.

Maybe you go further still. You look up the meanings and properties of crystals, and leave little groups of them huddled on your shelves or nightstand. You draw sigils on your medicine bottles, and paint runes on yourself in arnica gel and muscle rub.

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All of this is to explain how I ended up with my favorite medicinal rock.

Crystal guides usually give the same set of properties for a given stone — you use rose quartz for love, amethyst for peace and relaxation, and so forth. I come from a magical background staunchly rooted in personal associations. I don’t believe it’s necessary or desirable to reinvent the wheel, but most of the herbs, stones, and other tools I use are ones that I have a personal history with, and what I’ve learned about them doesn’t always match what the guides say.

Selenite is usually used to cleanse things. You can keep it with other stones or tools, or use the little wands to clear negative energy out of spaces like a spiritual lint roller. One crystalworker uses them to help itching from bug bites and eczema. I used to keep a couple pieces of it around to keep stagnant energy from accumulating. Now? I use selenite crystals for pain.

I get terrible neck pains sometimes, a direct consequence of a rare, incurable  neurological condition. There’s no help for it. I’ve been given everything from massage, to camphor gel, to opiates, to tricyclic antidepressants, all to little avail. If the pain becomes bad enough, it means I need to visit the ER for an emergency lumbar puncture and more hardcore pain management (which is also why I have several opinions on how the opiate crisis is affecting the way pain is managed in emergency settings, but that’s neither here nor there). If it isn’t yet at the ER point, I just have to suck it up.

One night, in a moment of sleepless desperation, I picked up a rough selenite wand and pressed it to my neck. And it worked.

Now, I keep a smoothed and shaped wand of selenite in my bedside table, ready for all of the times when pain keeps me awake. I don’t need to do much with it, just pressing it lightly to the places that hurt is often enough to give me enough relief to sleep. Would I use it instead of evidence-based medicine? No, but I also haven’t met a doctor yet that objects to me having a safe, drug-free means of relieving pain. I still need to visit the ER when things become bad enough — I haven’t found any stone that can substitute for having about 15 mmHg of extra fluids siphoned off my brain, unfortunately — but this helps make the other days more bearable.

Sometimes, chronic illness makes you do things. You might give up nightshade vegetables, take up polyphasic sleeping, or begin carrying magnesium oil in your bag.

Or, you might befriend a small, helpful rock.